No Meds or Meds?

Yesterday for some weird reason, I forgot to take my morning meds.  This had good and bad effects for my day.  I had a hard time breathing, moving, and coping.  All day, I struggled with pain and stuffed head.  Of course I wasn’t sure I’d forgotten – I might have been having a bad day – so I couldn’t take anything until I figured it out.  This meant the end of the day when I got home.  It was a miserable day.  EVERYTHING hurt including a massive sinus migraine.

The nice thing – hey my drugs do stuff for me.  There are times I HATE taking my meds.  I think – oh I’ll just stop taking them and cope on my own.  I know today that will make my life significantly more painful. 

By the time I got home, I could barely get up the two steps from my family room to my kitchen.  Once I was in the recliner, I didn’t not want to move.  So I live (with my meds) at a six for pain.  This was a twelve.  It took everything in me not to sit there and ball my eyes out.  Only person to blame was me.  I picked up my med container and sure enough – there they were.  Swallowing them, I tried to sit back and relax in the hopes the pain would ease.  It did eventually but it took most of the night. 

I’m still in pain today but it might be the weather causing the problem.  Yes I definitely took my meds this morning. 

Insurance Companies

My daughter takes a very expensive medication – like $500 a month.  When she got her own insurance, the company refused to pay for it.  Their logic was that there were less expensive drugs out there that she could try.  They told her that for them to pay for this expensive drug then she would have to try these less expensive options.
This sounds reasonable except that this will make the third time she went through the process.  The first time was when the doctor initially prescribed the meds for her.  The second time was when I switched insurance companies (to the same one she has now).  It is in her records that she has done this before but they were insistent. 
Since she can’t afford the drug without insurance, she had to jump through the hoops they demanded.  The first drug – did nothing.  The subsequent three drugs she had allergic reactions to.  The first allergic reaction she had a hard time breathing and broke out in hives.  The other two she broke out in hives.  At one point the pharmacy didn’t want to give her a prescription because she had an allergic reaction to one of the other drugs. 
I made her call me and talk to me while she took one of the prescriptions because I was worried she would stop breathing and not have anyone there to help her. 
It is ridiculous that the insurance company had any say in which prescription the doctor gave to her.  She has been on this medication for ten plus years and it works.  Why mess with that?  Especially when she had already tried other medications that didn’t work or that she was allergic to – this seems wasteful as she now has four prescriptions she has to discard because they didn’t work.  It isn’t saving money if she can’t use them. 
It is ridiculous to change a person’s medication when what they are taking is working successfully.  Isn’t that the point of taking medication – finding what works and sticking to it?  I know it is a lot of money but that is something to take up with the pharmaceutical company not the patient – especially when there was documentation that other medication hadn’t worked.  

Medications and alternatives

Since my pain med was taken off the market by the FDA, I’ve had a difficult time finding pain meds that work and that doctors are willing to prescribe for me.  My ortho says – pain meds should be maintained by the GP.  My GP says – if you are on delauded then the doctor who prescribed it has to continue prescribing it. 

This is just dandy for me as I’m left with no pain meds but over the counter pain relievers.  Anyone who has regular pain knows that this is frustrating and difficult.  I have no control over the doctors.  I can’t make them prescribe drugs for me.  My only option is to find other ways to manage my pain. 

To this end, I’ve found heat works well for me.  When my knees, ankles, and other joints are screaming with pain, I put a heating pad on them.  I’d love to have a hot tub but that is outside my budget.  The heating pad puts heat right on the joint which eases most of the pain.  I know I’m unusual for this – most people prefer ice packs.  The only time an ice pack helps is when I have a migraine and I put a cold cloth or ice pack on the back of my neck.  Ice or cold (like the sub-zero weather we’ve been having) actually increases my pain.  I avoid it as much as possible.

When the pain is at a tolerable level, I make a point of moving the joint.  For my ankles, I will do flexes and points of my foot as well as circles to keep the joint as limber as possible.  For my knees, this is harder because my one knee almost never stops hurting but I try to do gentle motions that keep it moving.  Too much walking or standing make the knee hurt more.

Slippers help keep my feet warm.  I’m a barefoot girl.  I don’t like stuff on my feet but walking across cold floors and letting my feet get cold is a sure way for my pain level to spike.  Using slippers keeps the cold away from my feet and the pain at bay.

I’ve had so many people tell me “You need to get up and move more”.  In all honesty, I’ve tried this and all it does is aggravate my knees further.  Having my legs at a particular angle makes it so they don’t hurt.  When my pain level is high, this is all I really care about. 

On those mornings when I can’t close my hands, I use hot water to wash away the ache.  Then I also crochet on a nightly basis.  This helps to keep my fingers limber.  One of the hardest things I have to cope with is a cold steering wheel.  Thick gloves go on my hands before I touch anything outside.  Unfortunately my hands still get cold so I’m still looking for something to protect them better.  I may crochet a steering wheel cover but I have a concern about the cover slipping while I’m driving.   

Massaging lotion into my hands helps to limber them up and warm them up.  It also helps other joints like my wrists, elbows and so on.  Getting a professional massage definitely helps with my pain level but the budget isn’t all that happy when I spend money on massages.

With our extreme cold weather, I put a scarf between my knee and anything cold.  I use my long scarf to cover up the knee when I’m on my scooter in the cold.  It gives it another layer of protection. 

Ultimately, I’m going to have to figure out the pain med issue, but in the meanwhile, these little tricks help make life less painful.  I just have to find a doctor I trust – this is no easy feat.